Connecticut State Department of Public Health

Parent Resources

 

The following list consists of vetted and helpful links to various organizations and sites that can help new parents in case of concerns about Newborn Screening.

 

Disease and Testing Information

 

Support for Parents/Advocacy Groups

 

 
https://www.newsteps.org/  http://www.pathct.org 
https://www.cdc.gov/newbornscreening/index.html  http://www.p2pusa.org 
https://ghr.nlm.nih.gov/primer/newbornscreening/nbs  https://www.aidanhasaposse.org/about.html 
http://www.savebabies.org/  https://brianshope.org/ 
http://www.geneticalliance.org/   
https://www.marchofdimes.org/   
https://rarediseases.org/   
 https://minorityhealth.hhs.gov/    
 https://www.babysfirsttest.org/
   
   
   
   
   

 

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